Anencephaly, ICBDSR Report 2024

Programs grouped by geography and decreasing prevalence, data 2015-2020 (some programs with fewer years), prevalence per 10,000 births
Legend: Hosp, hospital-based; Pop, population-based; T-incl, terminations of pregnancy included (T-not, not included)
country Program Ascertainment Births Cases Prevalence 95% CI Prevalence Chart
Europe & Central Asia
France France Brittany Pop, T-incl 194,447 147 7.6 6.4 - 8.9 96
Ukraine Ukraine OMNI Net Hosp, T-incl 130,244 88 6.8 5.4 - 8.3 85
Italy Italy Lombardy CMRL Pop, T-incl 12,114 8 6.6 2.9 - 13 133
United Kingdom England NCARDRS Pop, T-incl 2,036,067 1,090 5.4 5 - 5.7 65
France France REMERA Pop, T-incl 337,271 153 4.5 3.8 - 5.3 54
France France Paris Pop, T-incl 147,551 65 4.4 3.4 - 5.6 63
Netherlands Northern Netherlands Pop, T-incl 91,261 40 4.4 3.1 - 6 63
Finland Finland Pop, T-incl 254,007 95 3.7 3 - 4.6 53
Czechia Czech Republic Pop, T-incl 339,034 124 3.7 3 - 4.4 43
Germany Germany Saxony Anhalt Pop, T-incl 103,943 29 2.8 1.9 - 4 42
Italy Italy Campania BDRCam Pop, T-incl 151,828 36 2.4 1.7 - 3.3 32
Italy Italy Veneto Pop, T-incl 147,708 34 2.3 1.6 - 3.2 32
Malta Malta MCAR Pop, T-not 22,377 5 2.2 0.7 - 5.2 51
Sweden Sweden Pop, T-incl 701,879 149 2.1 1.8 - 2.5 22
Italy Italy Tuscany RTDC Pop, T-incl 146,815 29 2.0 1.3 - 2.8 31
Italy Italy Emilia Romagna IMER Pop, T-incl 199,036 30 1.5 1 - 2.2 21
Slovakia Slovak Republic Pop, T-not 343,485 9 0.3 0.1 - 0.5 00
Latin America & Caribbean
Chile Chile RENACH Hosp, T-incl 372,524 236 6.3 5.6 - 7.2 76
Mexico Mexico RYVEMCE Hosp, T-not 26,648 15 5.6 3.2 - 9.3 93
- South America South America ECLAMC Hosp, T-not 330,135 113 3.4 2.8 - 4.1 43
Argentina Argentina RENAC Hosp, T-not 1,689,069 408 2.4 2.2 - 2.7 32
Colombia Colombia Cali Pop, T-incl 55,537 8 1.4 0.6 - 2.8 31
Costa Rica Costa Rica CREC Pop, T-not 403,647 55 1.4 1 - 1.8 21
Colombia Colombia Bogotá Pop, T-incl 233,100 10 0.4 0.2 - 0.8 10
North America
United States USA Iowa IRCID Pop, T-not 155,651 39 2.5 1.8 - 3.4 32
United States USA Texas BDES Pop, T-incl 1,946,187 451 2.3 2.1 - 2.5 22
Canada Canada Alberta ACASS Pop, T-incl 317,752 58 1.8 1.4 - 2.4 21
Canada Canada National CCASS Pop, Other 1,717,113 171 1.0 0.9 - 1.2 11
Middle East & North Africa
Iran Iran TRoCA Hosp, T-incl 37,552 5 1.3 0.4 - 3.1 30
Israel Israel IBDSP Hosp, T-not 203,574 15 0.7 0.4 - 1.2 10
East Asia & Pacific
New Zealand New Zealand Pop, T-not 59,976 5 0.8 0.3 - 1.9 20