Encephalocele, ICBDSR Report 2024

Programs grouped by geography and decreasing prevalence, data 2015-2020 (some programs with fewer years), prevalence per 10,000 births
Legend: Hosp, hospital-based; Pop, population-based; T-incl, terminations of pregnancy included (T-not, not included)

country Program Ascertainment Births Cases Prevalence 95% CI Prevalence Chart
Latin America & Caribbean
- South America South America ECLAMC Hosp, T-not 330,135 95 2.9 2.3 - 3.5 42
Mexico Mexico RYVEMCE Hosp, T-not 26,648 6 2.3 0.8 - 4.9 51
Chile Chile RENACH Hosp, T-incl 372,524 55 1.5 1.1 - 1.9 21
Argentina Argentina RENAC Hosp, T-not 1,689,069 185 1.1 0.9 - 1.3 11
Costa Rica Costa Rica CREC Pop, T-not 403,647 23 0.6 0.4 - 0.9 10
Colombia Colombia Bogotá Pop, T-incl 233,100 7 0.3 0.1 - 0.6 10
Colombia Colombia Cali Pop, T-incl 55,537 1 0.2 0 - 1 10
Europe & Central Asia
France France REMERA Pop, T-incl 337,271 64 1.9 1.5 - 2.4 22
France France Brittany Pop, T-incl 194,447 36 1.9 1.3 - 2.6 31
Ukraine Ukraine OMNI Net Hosp, T-incl 130,244 23 1.8 1.1 - 2.6 31
Czechia Czech Republic Pop, T-incl 339,034 57 1.7 1.3 - 2.2 21
Finland Finland Pop, T-incl 254,007 42 1.7 1.2 - 2.2 21
France France Paris Pop, T-incl 147,551 23 1.6 1 - 2.3 21
United Kingdom England NCARDRS Pop, T-incl 2,036,067 298 1.5 1.3 - 1.6 21
Netherlands Northern Netherlands Pop, T-incl 91,261 12 1.3 0.7 - 2.3 21
Germany Germany Saxony Anhalt Pop, T-incl 103,943 11 1.1 0.5 - 1.9 20
Sweden Sweden Pop, T-incl 701,879 70 1.0 0.8 - 1.3 11
Italy Italy Campania BDRCam Pop, T-incl 151,828 14 0.9 0.5 - 1.5 20
Malta Malta MCAR Pop, T-not 22,377 2 0.9 0.1 - 3.2 30
Italy Italy Veneto Pop, T-incl 147,708 13 0.9 0.5 - 1.5 20
Italy Italy Lombardy CMRL Pop, T-incl 12,114 1 0.8 0 - 4.6 50
Italy Italy Emilia Romagna IMER Pop, T-incl 199,036 15 0.8 0.4 - 1.2 10
Italy Italy Tuscany RTDC Pop, T-incl 146,815 9 0.6 0.3 - 1.2 10
Slovakia Slovak Republic Pop, T-not 343,485 21 0.6 0.4 - 0.9 10
North America
United States USA Iowa IRCID Pop, T-not 155,651 22 1.4 0.9 - 2.1 21
Canada Canada Alberta ACASS Pop, T-incl 317,752 38 1.2 0.8 - 1.6 21
United States USA Texas BDES Pop, T-incl 1,946,187 195 1.0 0.9 - 1.2 11
Canada Canada National CCASS Pop, Other 1,717,113 109 0.6 0.5 - 0.8 10
Middle East & North Africa
Iran Iran TRoCA Hosp, T-incl 37,552 3 0.8 0.2 - 2.3 20
Israel Israel IBDSP Hosp, T-not 203,574 7 0.3 0.1 - 0.7 10
East Asia & Pacific
New Zealand New Zealand Pop, T-not 59,976 3 0.5 0.1 - 1.5 20